If Rare Diseases represent close to 30 million patients across Europe, most of them are of such low prevalence (often affecting one per 100 000 citizens or less) that they receive little attention, as do the individuals who suffer from them. As PNH and AA are Rare Diseases, it is our belief that patients can feel isolated and often experience difficulties coming across serious and validated information on their diseases, and even more so in their own language.
By linking the communities together thanks to this common platform, our wish is to share knowledge and information with all patients, to help patients come out of their isolation, and help them communicate with other patients in their region, country, or abroad, in just a click.