HematosLife

HematosLife
Europe

SITEMAP | HEMATOSLIFE HELP

New to HematosLife?
Sign up now HematosLife
it's completely free!

or sign in:
lost your password?

Australians fight for PNH treatment

"In Australia, Soliris is only available to trial patients and those on a compassionate use scheme until May 2011.  The only way Soliris can be funded in Australia is through the Life Saving Drugs Programme.  Funding through the LSDP is only available to ultra-orphan life saving drugs and the Australian Government has refused to approve this.  We were hoping it would be funded in the recent Federal Budget declared on 11 May 2010 and were devastated when it was not." Says Linda Charlton, President of the
PNH Support Association of Australia Inc.

 

Read the full article in the Herald Sun: "Please help us live two Victorians beg Federal Government".

  • HematosLife

Research
PNH
AA
Events
Events
News
News
Community
Blog
Diseases
PNH
AA

  PNH     news     hematoslife     Rare Diseases     downloads     AA     donate     forum     organisations     genetic disorder     profile     links     blog     personal messages     events  
Impression design + internet Enkhuizen, grafisch ontwerp, websites, website, webdesign, intranet, content management systemen (CMS)