Australians fight for PNH treatment TWO Victorians have been effectively condemned to death by the Federal Government, which is refusing to pay for a lifesaving drug. Read more
Lancement du site HematosLife On June 5th the HematosLife website was officially launched. Read more
Réunion de patients : Essen le 05/09/09 Le 05 Septembre 2009, l'Université d'Essen en Allemagne organise un séminaire dédié aux patients souffrant d'HPN et d'aplasie médullaire. Read more